The Ileal Pouch Database

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Project progress (June 2004)

At present, thirty hospitals have shown interest to join the ACPGBI ileal pouch registry using existing and future patients. It is estimated that a total of 3000 patients should be collected from existing databases, with approximately 300-400 new cases added to the ACPGBI registry per year from the thirty registered units. Data will be collected locally and custom-made extraction tools used for the electronic forwarding of information to a secure central server. An ileal pouch outcomes steering group will be set up on behalf of the ACPGBI to establish the project milestones and areas of research interest. External funding will be sought for setting up a research team to that effect.

 
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